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Wednesday, May 17, 2017

Oops, I Did It Again....

Oops, I did it again!  (See What We Did In The Waiting Room Would Shock Anyone Under 30 UPDATED)

To follow the Saga, click the links below: 
(See Oops, I Did It Again.... PART 2)

My Visit With the Extraordinary New Doctor March 31, 2017

My Second Visit With the Extraordinary New Doctor April 21, 2017

My Third Visit With the Extraordinary New Doctor May 9, 2017

Why I Was Hysterical Laughing Before And After My Biopsy

Surprising Biopsy Results

I went to see the new ENT today, May 16, 2017. He came highly recommended.

I liked him.  Like my new ENT, he took the time to actually LISTEN.  He is also taking the time to consult with the Allergist/Immunologist. Finally, doctors willing to TALK TO ONE ANOTHER to help figure this mystery out!

I told him the Allergist/Immunologist wants a biopsy of the salivary glands and handed him the note she gave me.  I also showed him the paper that had what she THINKS I may have written on it. 

He examined me, then said he would speak with the Allergist/Immunologist and get back to me.  He feels this is a unique case and he's not qualified to do the type of biopsy that needs to be done.  He wants to send me somewhere else to have it done. 

He mentioned a specific Specialist at Mt. Sinai Hospital in New York City.  He said the doctor is about 80 years old, but he's still practicing and he's excellent.  He specializes in mystery/unique/difficult cases and he performs the type of biopsy she wants.   

He also said he may send me to Long Island Jewish in Nassau County, which is now part of Northwell Health.

He wants to use an academic facility, he said.  They are on the cutting edge of medicine and they can do things other hospitals cannot.

My family has had experience with Mt. Sinai and they were excellent.  I explained to several doctors through the years why we used that facility and was told, "that's the place you definitely would want to be for that situation." We had a young family member with a very rare and aggressive form of liver cancer (the type that strikes young, healthy individuals, mostly males).

My husband's good friend was also sent from Long Island to Mt. Sinai in New York City to treat a cancer (different from my family member's situation). That hospital and doctor saved his life.  In fact, he was in the hospital part of the same time my family member was. (See 15 Steps To Take To Meet A Brilliant, Kind, Delightful Man)

We couldn't have asked for better doctors, nurses, and care at Mt. Sinai.  They also had programs and clinical trials that other hospitals didn't have available.  The team of doctors were always up front and honest from day one, yet caring and knowledgeable. (See Willy Wonka! That's Not Me...)

When the doctor mentioned Mt. Sinai, I was relieved.  He  had said, "I may have  you travel a bit. Would you be willing to go into New York City."  My response, "I will travel to the ends of the earth if someone could figure this out and help me!"

So... now I await a call back from the ENT after he speaks with the Allergist/Immunologist.

The saga continues.  Stay tuned...

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1 comment:

  1. Thanks for sharing your Ooops I did it again post to the blogger’s pit stop. Very informative.
    Pit Stop Crew