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Sunday, March 19, 2017

5 Signs You Need To Go To The ER For An Allergic Reaction

 Five signs you need to go to the ER for an allergy reaction:   (See Round And Round We Go... The Saga Continues)
  • Swelling - especially of the mouth, tongue, throat, neck, nose or eyes.
  • Rash or hives - whether it's isolated or covering most/all of the body..
  • Signs of  Anaphylaxis (what is anaphylaxis) - cough, difficult or irregular breathing, wheezing, dizziness, heart palpitations, fainting, nausea, vomiting, abdominal pain and diarrhea 
  • Skin flushed red or person turning pale and/or going unconscious.
  • Headache, confusion
If it's a first time issue, go immediately.  If you aren't a newbie and have prescription allergy medications, Benadryl and an EpiPen (see Lower-Cost Generic for EpiPen), you may want to monitor the situation before heading to the ER. 

It happened again.  I have more paper for my wall.  I can start on a second room! (see In The ER Again - This One Is A Doozy)

Wednesday, 3/15/17, I made the soup (recipe) I always make in anticipation of a snow storm (see The Snowstorm That Wasn't - The Allergy Attack That Was). I used all the same ingredients (all organic and gluten, nut, soy, egg and corn free).  

I set aside part of a carrot and potato for lunch. When I ate lunch, it didn't go well.  I never ate the soup, it was put in the freezer and fridge.

Thursday, 3/16/17, I made spaghetti and meatballs for dinner and all was fine.

Friday, 3/17/17, I ate the leftover spaghetti and meatballs.. I also took a small taste of the chicken from the soup I made.  I wasn't sure if it was the chicken (assuming it was as it was cooked with the potatoes and carrots) or the spaghetti and meatballs but all was not fine.

Friday was St. Patrick's Day.  I refused an invite to my sister's house as hubby doesn't like corned beef and cabbage and I can't eat anything not cooked by me (see What About Restaurants, Parties, Invites And Public Places?)

After the taste of chicken and the spaghetti and meatballs, I started to get a reaction.  What the hell was going on.  My neck, face tongue, throat and nose swelled.  I took a Benadryl.  I had already taken my allergy medications for the day.

You can adjust the recipe to suit your needs (i.e. gluten free flour, egg substitute, etc.)

I got nervous.  I called my sister and she told me they hadn't cooked anything there that would affect me (the soda bread was cooked at my other sister's house). 

So I went over.  I was more comfortable around a lot of people.  My niece is a Physician's Assistant and isn't squeamish about using an EpiPen.

I was desperately trying to avoid the ER.  Had it gotten bad enough, I would have gone.  

The next morning, Saturday, 3/18/17, I woke up with my neck still swollen and very painful. I couldn't turn my head. 

You guessed it.  My dad took me to the ER.  I preferred him, he stays calm, hubby gets upset.  

I saw a young PA, he looked 12!  He ordered IV steroids which helped but didn't stop the swelling completely.  They prescribed steroids to my pharmacy, but I don't know if I can take them, I pick up the prescription today and will speak with the pharmacist.

I need to find a specialty pharmacy and am still working on it (see What Is A Compounding Pharmacy And Do You Need One?).  

The PA is not sure it was an allergic reaction.He gave me a diagnosis stating what he thought it was, which I won't say right now, until/if it's confirmed.  He gave me the name of a specialist who is a top doctor.

The PA warned me not to Google.  He said, "you will think you are dying."  Those where his exact words. I don't Google unless I have a diagnosis and have been taught about the illness.  I prefer doctors who have dedicated their lives to medicine over Google.

After a diagnosis, I will join groups online and Google (with the ability to understand what is accurate and what isn't).  Having a diagnosis can allow me to ask my doctor if I find information that interests me.  Prior to diagnosis, doctors generally won't respond to Google questions.  They consider it a wild goose chase.

The ER doctor also saw me and agreed with the PA.  They both agree that while I've had allergic reactions in the past, there is also an underlying issue (I've had this problem before).  Per my previous allergists and current allergists, I am allergic to a long list of foods, chemicals, etc.

I have Lymphedema (not from breast cancer).  I have Hashimoto's (an autoimmune disease).  When you have autoimmune issues you tend to develop other autoimmune issues. That's what the PA thinks I have.

When I saw my allergist on Thursday, he gave me the name of the same doctor the PA gave me.  He didn't say why, just that he wanted me to see him.  I called  Friday, but couldn't get through.  I will try again on Monday.

A friend from my old job called last night.. I told her about the recommended doctor. She has a friend who works at the same facility as the doctor.  She highly recommends him. She too said he's one of the top doctors in his specialty (see NY Top Docs).

My friend had a family member that had a problem no doctors could figure out.  A young doctor right out of school  diagnosed it.  Sometimes right out of school is a good thing. This PA, who looked 12, was not long out of school with a sharp mind and the most recent training.  He was not set in his ways.

Maybe he's my knight in shining armor in my quest for medical help!

Why did none of the other million doctors I've seen (if it's a GIST, I've seen them - see Dealing With The Issues Associated With Hashomoto's Diseasethink of this possible diagnosis or recommend this doctor?

I don't know.  Sometimes you need to search a long time to get the right people in your life.  Kind of like the old saying, "you have to kiss a lot of frogs before you find your prince."

Please think good thoughts that this PA is correct, the specialist he recommended takes my insurance and that he can actually help me!!!

Stay tuned....

UPDATE:  (See Why Do Doctors Order Their Own Testing?)

If your or someone you know has had a mystery medical issue and it's finally been resolved, please leave a comment.  If you or someone you know have a similar issue to mine and you just want to chat or have some information, please leave a comment. 

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