|Me circa 1980 heading out to a dance class.|
- To travel,
- To eat out, try new restaurants and ethnic dishes.
- My glass of wine,
- Visiting family and friends.
- My amazing social life.
- I was a beach bum, if you consider a teen who worked and went to school full time a bum.
- I loved to dance. I was always in discos (that's what they were called back then).
- I would leave in the morning and spend the day on the beaches out east.
- By nightfall, my parents would get a call saying I was in New York City for dinner and dancing with friends and family.
The way I see it, things could be worse.My family has lived through worse. Sometimes bad things happen to good people and there's no reason for it.
Life hands each and every one of us challenges in one way or another.
Today, I'm a homebody. Not by choice. It's a challenge to leave the house.
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|Me with my daughter on a Disney cruise in 1999|
At the time, I was able to eat like a NORMAL person. On my visits to Mexico, I loved tacos from the street stands. Of course, I loved dining in the local restaurants too. For the record, I have NEVER gotten sick in Mexico. If you take proper precaution, you won't.
I enjoyed taking my kids to the circus, sporting events, carnivals and taking a little taste of a pretzel I bought them to share. Now, just smelling a hot, steaming pretzel will send me to the hospital with an allergy attack!
|l - r Toronto (we saw a Yankee game there too). We made several trips to Hershey Park. Disney cruise (just me and my kids). Several trips to Virginia Beach and Sesame Place.|
|top - l - r I took the kids to the circus many times (just us and with friends and family) Many trips to The Bronx Zoo with friends and family. bottom l - r The Jones Beach breast cancer walk. White water rafting in Maine.|
I used to be able to "go" forever. I worked full time, went back to school to earn my Bachelor's Degree and NEVER missed a thing with my kids. I slept about four hours a night for six years, but luckily, back then, I didn't require much sleep. I loved all the fun adventures I had and shared with my kids.
My issues have gotten to the point that I can't eat anything I haven't cooked myself. No more restaurants, accepting dinner invitations from friends and family, tastes of hot pretzels, popcorn at the movies, etc. I can no longer walk, run and breathe the way I used to. Travel now is simply a dream.
I look at the positive side. I GOT TO DO IT!!!! I have precious memories, pictures and videos. It was fun times with my kids, family and friends. We all learned a lot - I always say you learn more LIVING than you ever will in any classroom!
Everything I do now is anxiety-filled. The slightest thing can cause anxiety because I never know what may set off a medical emergency.
I'v refused an annual Lady's night for about 30 women in recent years. I refused last year, and coincidentally, was an inpatient in the hospital the night of the dinner. I refused again this year. It's too far away and too risky. (See Good News! AND THEN... THIS HAPPENED!!!!)
These days, I look at the pros, it's what keeps me going. (See Pros And Cons)
I am happy for the little things. What is normal to others is a big deal for me. (See Incredible, Amazing Party With My Fabulous Fun, Insane Family And Friends!)
The times when I can be with family and friends is what I cherish. (See Family, Friends, Food And Fun!)
You don't truly know what others are going through. You can't tell just by looking. What someone or something looks like may not be reality. (See That Doesn't LOOK Gluten Free)
I know people try to help. One word of advice, if you see a friend, relative, stranger who looks really sad, don't guess at the problem.
The worst thing a stranger did was to see my facial expression and say, "smile, it's not that bad."
I'm a friendly person, however, that day I didn't have it in me. I looked at him and said, "yes, Sir, it IS that bad." Sometimes it can be THAT BAD. No one can change it. It's beyond anyone's control.
|My little Mets fans, like "Daddy" - my hubby.|