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Thursday, January 5, 2017

Oh, I Know, You Have Celiac Disease. Umm, No, Not Exactly

I don't have Celiac Disease, I swear.  I'd like to shout it from the rooftops of New York City.


"So, are you sure you don't have celiac, because my Aunt/Uncle/Cousin/Friend can't eat gluten either, it's a sign of celiac!"  Everyone knows someone who is gluten free.  Everyone heard the buzz word celiac!  Just like not all Type II Diabetics have diabetes because they are overweight, being gluten free doesn't mean one has celiac.

I'm gluten free because I have an allergy.   I do not have celiac.  I've been tested, several times. Negative.

Signs of An Allergy to Wheat (Gluten) -But let's take a step back.  

Allergies can develop at any age.  Mine developed when I was in my 40's.  I also had Thyroid issues but it took years and several doctors to figure out what I actually have is Hashimoto's - hypothyroidism.

Hypothyroidism is an autoimmune disease.  Many studies have shown a connection between autoimmune thyroid disease (AITD) and gluten "intolerance" - aka allergy.

Gluten can kill me. I have issues with other foods, but this post is discussing gluten in detail.  To see symptoms of a gluten allergy visit this article

Whenever I come into contact with gluten, I have a very hard time breathing.  I gasp for air, cough and get stomach cramps, bloating and swelling.  My nose gets stuffy and I feel tired and weak. 

I must be completely gluten free.  How does one do that, gluten is in EVERYTHING?  Well, it's not exactly in everything, but it is in almost everything.  It's not easy, but it can be done.  

Here's some advice from personal experience and warnings from my Doctors.  

One allergist warned me to read all labels top to bottom every time.  He said, "I've seen more people in the Emergency Room who have told me they used that brand all the time than I can count." Manufacturers make changes.  They can change ingredients, productions processes, etc.  

Always, carry your EPIpen.  Mine are always in my pocketbook which is always near me. 

Inform more than one person wherever you are that you carry EPIpens and why and show them where they are.  

Just about everyone wants you to take the pen(s) out of your pocketbook to place onto a counter or somewhere else.  DON'T DO IT!  What I do is stand up the pens so that they are sticking out of my pocketbook.  Why?  Because it's easy to forget them, have them damaged, lost or picked up by children.  A young boy died partly because of that.  The pen was left behind, rather than taken with them as they drove for medical help.  

"At this point, I should have called 9-1-1. I said let’s go now, just to be safe. The epinephrine auto-injector was on the table right next to my purse, and Giovanni asked if he should use it. I said I didn’t think we needed to, that we should just get to the doctor. I threw all the meds into my bag and left."  Read more

Call manufacturers.  I had a Pharmacist help me find a Vitamin D that didn't have gluten in it.  The package said Gluten Free.  DO NOT read only the front of the package. I started reading the label and it listed wheat as an ingredient.  

I called the manufacturer and said, "your package says gluten free!" The representative told me, "we are allowed to say gluten free because there's such small traces of wheat."  Are you KIDDING ME.  I informed them I have severe reactions to ANY gluten and that their product is misleading. 


After reading ingredients, be sure to read warning signs.  Be on the lookout for where and how the product is processed. If the product is manufactured in a facility that processes products that contain gluten, it's dangerous.

Gluten can be in toothpaste, shampoo, cosmetics, toilet paper (some manufacturers use gluten to stick the paper to the roll - same with paper towel), skincare, medications, nail polish, bubble bath... the list goes on.  

The only way to be sure is to be careful. 

"Crustacean shellfish, eggs, fish, milk, peanuts, soybeans, tree nuts or wheat. These eight foods and food groups are responsible for 90 percent of all food allergies"  Read more

I eat all organic - gluten free, nut free, soy free, egg free, corn free and no sulfites. No,I don't live on ice chips!   

Tomorrow is going to be a snow day here on Long Island.  I plan on filming how I make organic, gluten free chicken vegetable soup!  

Below is my book that my Holistic Specialist recommended.  I love it!  

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