I was admitted due to infections in my leg, breathing issues (allergy/asthma attacks) and kidney failure. My longest stay was about six days.
It is difficult to be hospitalized. It is more difficult with allergy/immunology issues to foods, medications and chemicals. I was hospitalized in Stony Brook, St. Charles and Mather during 2016 I was in the Emergency Room of all and also Brookhaven. None of these hospitals were able to handle my allergy/immunology issues as far as food goes.
Stony Brook chose to put me in a private room and got approval from my insurance carrier. If you are concerned, ask for a private room, get the doctors or social workers to get approval.
I could not be fed anything in any of the hospitals as they could not serve all organic foods or guarantee there would be no cross contamination. I need foods without antibiotics, sulfites, and preservatives, as well as, gluten free, nut free, soy free, egg free and corn free. Therefore, all my meals were brought from home. It makes things more frustrating, and brings anxiety to the medical staff and patient.
The nursing staff in every hospital was phenomenal. They went above and beyond, speaking with Pharmacy and Pharmacy speaking with manufacturers.. They made sure to check my allergy band constantly and had signs posted. Even so, I still reminded them every time they walked into the room.
Constantly remind all medical staff of your allergies. DO NOT WORRY ABOUT BEING A PAIN IN THE BUTT. Being a pain can save you and the staff from a life-threatening situation or worse.
The tech who did one of my tests could have been a comedian. He had me laughing and calmed me down.
Tests requiring medications can be scary when you aren't sure how you will react. Each time, they had emergency personnel on call in the event they needed them!
Ask detailed questions. You have the right to refuse if you are uncomfortable. I refused a test because of the medication they needed to use. The doctor agreed and ordered a different test without medication.
My anxiety level was on overdrive every time I was in the hospital. I tried to keep a sense of humor; it's the only way to get through.
I keep my laptop with me. They offer free internet so I stay in touch with people through Facebook and Skype when they aren't visiting. I watch movies, YouTube and sometimes I write. I get through it and you can too,
Below is an Essay I wrote during one of my hospitalizations. True Story.
I’m told the nephrologist came to see me yesterday after my procedure. He found it pointless, as I was fruit loops, and said he would come back this morning. However, he did place orders. I am to pee into a hat for 24 hours straight. Oh, more fun! We started this new marathon at 6 a.m. this morning. Henry and I stumbled into the bathroom, we both looked so lovely, and I tried to situate myself over a hat on the bowl all in 10 seconds. The rest is done in the dark. And so, not only am I peeing into a hat, but I’m frantically waving my arms in a vain attempt to stimulate the light. It looks like I’m waving goodbye as I leave on a cruise ship on an exciting journey, but alas, my only destination is back to my hospital bed with Henry. So far, he’s been a gentlemen, he knows his place at the side of the bed and stays there.
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