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Tuesday, April 25, 2017

Congratulations! You Just Gave Birth To....


The Holistic Doctor had me go back to basics (See Back To Basics - Organic Baby Food? The Holistic Approach).  We got a kick out of that; you gotta keep a sense of humor, right? 


Well, we are going even FURTHER back.  My friend stopped by with her four month old twins the other day and I realized, I'm drinking the same nutrition they are!  (See 
Good News! AND THEN... THIS HAPPENED!!!!)


Yes.... I've gone back beyond baby food.  Now I'm on INFANT FORMULA!!!  (See My Visit With the Extraordinary New Doctor March 31, 2017).  You can buy this over the counter, however, mine is a prescription and is covered by my insurance due to medical necessity as is my friend's product for her twins.  


We can't go back much further.  Unless we are going to start all over.  Won't my mom be surprised to find out she's pregnant in her 70's!!!!!


With the problems I'm having, I would't mind a do-over!  Can I pick and choose too?  I'd like to be at least 5'9".  It stinks being 5'4", I can never reach anything, especially being married to a man who is 6" and puts everything on the ceiling.  I wan't long legs, dark hair and blue eyes!  I mean, since we are starting over, why not make it perfection (well, my perfection that is.)


I can hear the doctor now. telling my mom,  "Congratulations,you just gave birth to... a GIRL, 64 inches, 120 pounds 3 oz".  Ok, maybe the scale was on the fritz!  Basically, my mom just gave birth to a baby elephant!


I asked mom to rock me tonight with my blankie.  She refused, saying I need to learn to go to sleep on my own!  She did read me my favorite bedtime story though!


I'm thinking my next visit with the doctor will put me back into diapers!  Stay tuned...




Please subscribe to this blog and my YouTube Channel - link below.  Share with family and friends and on Social Media!  Feel free to leave an on-topic comment, make a suggestion, share an idea or ask on-topic questions (all comments require approval)


5 Signs You Need To Go To The ER For An Allergic Reaction


What Is A Compounding Pharmacy And Do You Need One?


The Snowstorm That Wasn't - The Allergy Attack That Was


The Family I Haven't Met Yet





Wanted - Short, Dark-haired, chunky woman... You Won't Believe Witness Descriptions!


Gluten Fee Vegetable Crockpot Lasagna - All Organic


Valentine's Day With Allergies???????


Where Do I Shop For Organic, Gluten Free, And More...


Snowstorm Anxiety When You Have Allergies, Asthma, Hashimotos, Cellulitis Issues


What About Restaurants, Parties, Invites And Public Places?




Back To Basics - Organic Baby Food? The Holistic Approach


Organic, Gluten Free Crockpot Lasagna in about Three Hours




Thursday, April 20, 2017

Who Am I?

THIS WAS NOT WRITTEN BY ME, BUT IT COULD HAVE BEEN!  


I'm an invisible autoimmune disease that attacks your thyroid gland causing you to become hypothyroid. I am now velcroed to you for life. 

Others around you can't see me or hear me, but YOUR body feels me.
I can attack you anywhere and any way I please.
I can cause severe pain or, if I'm in a good mood, I can just cause you to ache all over.


Remember when you and energy ran around together and had fun?
I took energy from you, and gave you exhaustion. Try to have fun now.
I can take good sleep from you and in its place, give you brain fog and lack of concentration.
I can make you want to sleep 24/7, and I can also cause insomnia.
I can make you tremble internally or make you feel cold or hot when everyone else feels normal.
I can also give you swollen hands and feet, swollen face and eyelids, swollen everything.
I can make you feel very anxious or very depressed, too. I can also cause other mental health problems.
I can make your hair fall out, become dry and brittle, cause acne, cause dry skin, the sky is the limit with me.


I can make you gain weight and no matter what you eat or how much you exercise, I can keep that weight on you. I can also make you lose weight. I don't discriminate.(See Why Was I Gaining Weight? Why Couldn't I Lose Weight?)
Some of my other autoimmune disease friends often join me, giving you even more to deal with.
If you have something planned, or are looking forward to a great day, I can take that away from you. You didn't ask for me. I chose you for various reasons:
That virus or viruses you had that you never really recovered from, or that car accident, or maybe it was the years of abuse and trauma (I thrive on stress.) You may have a family history of me. Whatever the cause, I'm here to stay.


I hear you're going to see a doctor to try and get rid of me. That makes me laugh. Just try. You will have to go to many, many doctors until you find one who can help you effectively.
You will be put on the wrong medication for you, pain pills, sleeping pills, energy pills, told you are suffering from anxiety or depression, given anti-anxiety pills and antidepressants.
There are so many other ways I can make you sick and miserable, the list is endless - that high cholesterol, gall bladder issue, blood pressure issue, blood sugar issue, heart issue among others? That's probably me.


Can't get pregnant, or have had a miscarriage?
That's probably me too.
Teeth and gum problems? TMJ? I told you the list was endless.
You may be given a TENs unit, get massaged, told if you just sleep and exercise properly I will go away.

You'll be told to think positively, you'll be poked, prodded, and MOST OF ALL, not taken seriously when you try to explain to the endless number of doctors you've seen, just how debilitating I am and how sick you really feel. In all probability you will get a referral from these 'understanding' (clueless) doctors, to see a psychiatrist.



Your family, friends and co-workers will all listen to you until they just get tired of hearing about how I make you feel, and just how debilitating I am.
Some of them will say things like "Oh, you are just having a bad day" or "Well, remember, you can't do the things you use to do 20 YEARS ago", not hearing that you said 20 DAYS ago.
They'll also say things like, "if you just get up and move, get outside and do things, you'll feel better." They won't understand that I take away the 'gas' that powers your body and mind to ENABLE you to do those things.


Some will start talking behind your back, they'll call you a hypochondriac, while you slowly feel that you are losing your dignity trying to make them understand, especially if you are in the middle of a conversation with a "normal" person, and can't remember what you were going to say next. You'll be told things like, "Oh, my grandmother had that, and she's fine on her medication" when you desperately want to explain that I don't impose myself upon everyone in the exact same way, and just because that grandmother is fine on the medication SHE'S taking, doesn't mean it will work for you.
The only place you will get the kind of support and understanding in dealing with me is with other people that have me. They are really the only ones who can truly understand. Pray you never get me. 



Please subscribe to this blog and my YouTube Channel - link below.  Share with family and friends and on Social Media!  Feel free to leave an on-topic comment, make a suggestion, share an idea or ask on-topic questions (all comments require approval)


5 Signs You Need To Go To The ER For An Allergic Reaction


What Is A Compounding Pharmacy And Do You Need One?


The Snowstorm That Wasn't - The Allergy Attack That Was


The Family I Haven't Met Yet





Wanted - Short, Dark-haired, chunky woman... You Won't Believe Witness Descriptions!


Gluten Fee Vegetable Crockpot Lasagna - All Organic


Valentine's Day With Allergies???????


Where Do I Shop For Organic, Gluten Free, And More...


Snowstorm Anxiety When You Have Allergies, Asthma, Hashimotos, Cellulitis Issues


What About Restaurants, Parties, Invites And Public Places?




Back To Basics - Organic Baby Food? The Holistic Approach


Organic, Gluten Free Crockpot Lasagna in about Three Hours




Saturday, April 15, 2017

IT Struck Again Last Night - What Is IT????


IT struck again last night.  The monster inside me reared its ugly head. (See Why Am I Not Posting Recipes? Because IT Has Started Again!)  I really could use a Divine Intervention right about now (See Divine Intervention? Amazing Luck? Or Was It Jinxed Real Estate? You Decide)

See: How To Leave A Comment On This Blog


Per my new doctor's instruction, I went to Stony Brook ER and handed them the notes she had given me instructing them to run certain tests while IT was happening. (See My Visit With the Extraordinary New Doctor March 31, 2017).  I did not know the tests entailed.

I gave the note to the Fast Track person, she handed it back. Then they called me for a chest Xray.  I gave the note to her.  She handed it back. Then they called me for blood work.  I gave the note to her. She handed it back. Everyone looked at it, shrugged, said they didn't know what that testing was, and said I had to wait to see the doctor.  Grrrr.

They left off some of my allergies in this print out, they forgot corn and eggs. I TOLD them to update and she said she did, but it didn't show on the print out.  Odd.
Stony Brook is a HUGE facility.  It's like it's own city.  They are partnering with Mt. Sinai and are leaders in research and innovative ideas. They just built a new building -  a children's hospital.


They are home to Carol M. Baldwin Breast Care Center.  Several family members have used the facility for breast cancer and I now see the breast surgeon there.  I have all my testing done there (routine testing).  I have been seeing a breast surgeon since around 2001 and had several procedures performed but luckily, never had breast cancer, which is a miracle on Long Island. We have a very high incidence of breast cancer.

For some Fast Facts about Stony Brook click highlighted link.


Stony Brook saved my sister's life back in November, 2016!  She had emergency surgery there by a very young, good-looking doctor of Indian descent.  I found out later, a family friend asked the doctor "does your mother know you are out doing surgery at this time of night?"  I'm told everyone cracked up.  It lightened a tense situation!

Stony Brook is a trauma center where people in bad accidents (and they happen A LOT here on Long Island) are airlifted from all over the Island to Stony Brook.  (See 12 Facts About Long Island, New York).  "Meyer and the other injured woman, Luisa S. Keszler, 26, of Southampton, were eventually airlifted from a nearby site to Stony Brook University Hospital,..."  (see story)


Across from the hospital is the University, where students from around the world study.  As a teen I took some summer classes there for fun when I was in high school.  There was a program that was called Kids For Kids!  Apparently now, it's moved to a college campus in Oakdale.


So... I went to Stony Brook.  I'd been hospitalized there before a few times.  I've visited family members who were hospitalized there.  I know many friends and family who work in the medical field, teach, study or work administrative positions at Stony Brook.  Everyone raves about their care and abilities.  And yet... if you notice, they have NO DIAGNOSIS.  Why is that?  Because no one knows what the heck IT is.


They ran the standard tests, blood work, xrays, urine, and they started an IV.  According to the Phlebotomist, everyone gets an IV now at their ER. I was sitting right outside the lab door and couldn't help but observe every patient coming out with an IV which I thought odd, but what do I know. 



When the Phlebotomist did her thing, blood started pouring down my arm, a lot of it.  What the hell? I was nervous enough, now I was starting to get really upset.  I'd never had that happen before.  She didn't think much of it.  She was just wiping me up.  I'm not blaming her.  I just think they are killing my veins maybe.  I don't know.  (See I Peeked! I Was Horrified! I was Traumatized!)


They used the IV later on to draw MORE blood to run the tests my doctor requested they run while IT was happening.  The doctor had to look at the note, decipher it, understand what the tests actually were and place the order. They couldn't add it on to the blood already drawn they said.  They needed new blood with a red cap on the vial this time!  


The test has to be sent out.  They said they will send results to my doctor and they will have a certain department also call me with results.  They didn't say when.  They sent two prescriptions to my pharmacy, Benadryl and Steroids.  Yipppeeee.  More fun.  Let's hope they can find me steroids that don't have something I'm allergic to in it! 


And so... the saga continues.  I see the Allergist/Immunologist again on April 21st as she's closed this week, assuming due to Spring Break for the kids and the Easter holiday.  Stay tuned.  



Please subscribe to this blog and my YouTube Channel - link below.  Share with family and friends and on Social Media!  Feel free to leave an on-topic comment, make a suggestion, share an idea or ask on-topic questions (all comments require approval)


5 Signs You Need To Go To The ER For An Allergic Reaction


What Is A Compounding Pharmacy And Do You Need One?


The Snowstorm That Wasn't - The Allergy Attack That Was


The Family I Haven't Met Yet





Wanted - Short, Dark-haired, chunky woman... You Won't Believe Witness Descriptions!


Gluten Fee Vegetable Crockpot Lasagna - All Organic


Valentine's Day With Allergies???????


Where Do I Shop For Organic, Gluten Free, And More...


Snowstorm Anxiety When You Have Allergies, Asthma, Hashimotos, Cellulitis Issues


What About Restaurants, Parties, Invites And Public Places?




Back To Basics - Organic Baby Food? The Holistic Approach


Organic, Gluten Free Crockpot Lasagna in about Three Hours