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Tuesday, June 20, 2017

Finally - Results of BRCA Testing - UPDATED

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SEE UPDATE BELOW - PLEASE SHARE THIS POST ON SOCIAL MEDIA. IT COULD SAVE A LIFE. 

The doctor called me this morning with the results of the BRCA test.  (See Do You Need A BRCA Test?)

To review a famous case of BRCA testing, click this article.


The doctor informed me that I have what is called CHEK2 Mutation.  HUH????????  . He said that the gene runs in families and increases the chance of breast cancer by 25% to 30%.  Oh, Joy!


He advised me:
  • To do self exams often 
  • Always get my mammographies on time 
  • Continue seeing the breast surgeon.  
  • This runs in families which is why a close family member probably got breast cancer so young
  • He can't tell if it's on my mom's side or dad's side so I need to inform all the women who are considered immediate family on both sides
  • Immediate family consists of  mothers, grandmothers, siblings, children, aunts, first cousins
  • All immediate family should be tested and if positive, should start getting mammographies early.
  • The earlier you catch any cancer, the better chance of survival, hence, why the young women in the family should start screening earlier than the current recommended age. 

I'd rather give the young women in the family this unpleasant news and have them tested and take precaution.  It is better than one day having them come to me with the horrific news that they have breast cancer and it was caught very late!  Knowledge is power.  

I will discuss this with my niece, a Physician's Assistant, too, just to hear what she has to say.  I will also tell my own family Physician Assistant that I've been seeing for years and who I happen to have an appointment with today.


The doctor told me not to Google.  He said I will scare the hell out of myself.  If you are interested in what the Mayo Clinic has to say, click on this article.  I skimmed it.

Remember, it will scare the hell out of you. My advice, talk to your doctor(s).  Request the testing from a Specialist if your doctor thinks it is necessary.  My doctor said it is necessary for all my immediate family!


UPDATE:  Per my visit with the Physician's Assistant at my family doctor's office this afternoon, I should discuss these results with the Breast Surgeon.  I told her I am seeing the Breast Surgeon again in July and that the Hemotologist's office already faxed over the report.  

She said I should discuss removing my ovaries with my Gynecologist and the Breast Surgeon  - I had a hysterectomy in 2007 but they chose to leave the ovaries.  

She also said the Breast Surgeon may want to put me on a 6 month schedule.  I was on that years ago, so, if I did it then, I can do it again! 

We shall see what the Breast Surgeon says!


JUNE IS NATIONAL SAFETY MONTH - SEE HOW YOU AND OTHERS CAN BE SAFE

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Monday, June 19, 2017

Seafood, Seafood And MORE Seafood!!!!!!

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This photo of Hudsons on the Mile Freeport NY is courtesy of TripAdvisor 

Long Island is known for its seafood.  After all, we are an island. What can you expect when where you live is surrounded by water! (See 12 Facts About Long Island, New York)

CLICK VIDEO

I used to love seafood.  I can't eat it any longer.  I can't eat anything any longer, well, almost nothing that is.  (See Why Am I Not Posting Recipes? Because IT Has Started Again!)

I know seafood, especially shellfish, is on the list of top food allergies. However, for those not allergic, Long Island is a great place to enjoy fresh seafood all summer long!  (See HELLO OUT THERE - DEAR MANUFACTURERS - YOU ARE DRIVING ME CRAZY!)


Of course, if you are allergic to shellfish, you can order fish other than shellfish as well.

CLICK VIDEO - Freeport, NY  Nautical Mile


CLICK VIDE - Bayville, NY

There's many towns on Long Island where you can find amazing seafood restaurants and more.  (See  Foods And Drinks That Originated In Or Are Associated With New York Part 1)

Of course further out East there's many more seafood restaurants.  Almost every town along the North Shore and South Shore will have wonderful seafood restaurants.


I used to love eating out in Hampton Bays.  The restaurant we frequented had indoor and outdoor seating.  The fishing boats pulled right up to the dock of the restaurant and unloaded.  You couldn't get fresher fish if you tried!  It went from the boats to your plates!


Another well-known restaurant, which I ate in a few times, is Oakland's Restaurant & Marina.


Of course, if you visit Long Island and love seafood, you MUST visit Claudio's on the North Shore in Greenport!

Those were the days.  Enjoy every moment.  Things can change in the blink of an eye.  (See What About Restaurants, Parties, Invites And Public Places?)


This blog post about The Hamptons, specifically Hampton Bays, is funny and right on the money. The author even mentions getting fresh seafood right off the fishing boats!


If you are a seafood lover and a beach lover, come visit Long Island this summer! Of course, you also want to enjoy a glass of Long Island wine and our famous cocktail!  (See Foods And Drinks That Originated In Or Are Associated With New York Part 2)

JUNE IS NATIONAL SAFETY MONTH - SEE HOW YOU AND OTHERS CAN BE SAFE

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Sunday, June 18, 2017

HELLO OUT THERE - DEAR MANUFACTURERS - YOU ARE DRIVING ME CRAZY!

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I want to attempt to make gluten free, brown rice muffins with either apple or banana flavor or both. I want to use as little ingredients as possible.  I'm allergic to gluten, nuts, soy, eggs and corn. (See Where Gluten Hides)


I'm thinking I can use my organic baby food in my recipe for flavor.


I got very excited.  I found gluten-free, organic baking soda!   Whooooo Hooooo!


It's not that expensive.  Another plus. It got 5 stars from the two who took the time to review it on this site and more good reviews on other sites!  We are in business.


Not so fast.  Maybe not.  I may have jumped the gun.  I need to continue reading.  Remember, we must ALWAYS read the ENTIRE package - front, back and sides


Well... there goes that.  I'm allergic to gluten, nuts, soy, eggs and corn. This product is manufactured in a facility that uses nuts and soy!  It has now been rendered useless to me.  

My letter to all Manufacturers!
DEAR MANUFACTURERS.  You are driving me crazy.  When someone has one allergy, they usually have more.  Per the Mayo Clinic:

The eight foods included in food allergy labeling account for an estimated 90 percent of allergic reactions. These eight foods are:
  • Milk
  • Eggs    
  • Peanuts
  • Tree nuts (such as almonds, cashews, walnuts)
  • Fish (such as bass, cod, flounder)
  • Shellfish (such as crab, lobster, shrimp)
  • Soy
  • Wheat
CLICK VIDEO


If you are going to make a gluten free product, WHY MAKE IT IN A FACILITY THAT MANUFACTURES FOODS THAT ARE ON THE MOST COMMON FOOD ALLERGY LIST.

I'm not just talking about this one product or this one manufacturer.

HELLO

Wake up, smell the coffee.  If you are going to help those of us with allergies, and we are a large population and getting larger by the day, then you have to make a real effort. I know it's "expensive" but think how much money you are losing because of how many of us can't buy your products!


Manufacturers can really add to the stress level.  (See Round and Round We Go... The Saga Continues)


I have enough stress.(See What About Restaurants, Parties, Invites And Public Places?)  I don't need even more!

Please, Manufacturers, make it easier on sufferers, help alleviate our stress and think of how many more people can now purchase your product!


To learn more about allergies:  Food Allergy Awareness Week - YOU CAN HELP!!


JUNE IS NATIONAL SAFETY MONTH - SEE HOW YOU AND OTHERS CAN BE SAFE

Please subscribe to this blog and my YouTube Channel - link below.  Share with family and friends and on Social Media!  Feel free to leave an on-topic comment, make a suggestion, share an idea or ask on-topic questions (all comments require approval)